Real-World Data: Driving Innovation and Improved Outcomes in Rare Diseases

Our cross-functional panel discusses the US landscape in rare disease and the challenges for health care access, creating value propositions and solutions, and the role of innovative real-world data strategies and communication channels for optimal engagement of all stakeholders.
Understand disparities in health outcomes and health access that drive patient centricity in rare disease
Recognize the challenges for using HEOR and RWE in value propositions in rare disease
Identify strategies to address these challenges and increase the role of HEOR and RWE in supporting market access and reimbursement for orphan drugs

55 minute video


Aaron Kamauu, MD, MS, MPH
Managing Director (Ikaika Health)
Canter Martin
EVP, Managing Director (Healthcare Consultancy Group)
Jonathan Wert, MD
SVP, Medical (Lumen Value & Access)
Laura Clark, MS
Senior Research Scientist (Lumen Value & Access)
Neeraj Iyer, PhD
Senior Director, Evidence Synthesis & Value Assessment (Novo Nordisk)

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The Collective Intelligence Webinars leverage the global expertise of the Healthcare Consultancy Group (HCG) to provide leading professionals across pharma and biotech with thought-leadership examples of future thinking, collaboration, and communication excellence.

HCG is a global leader in medical communications, comprising 7 interconnected agencies with distinct personalities and complementary skills.

The depth of our expertise allows us to configure custom solutions to meet your scientific, regulatory, and digital needs. Discrete offices and robust processes ensure the confidentiality of your data and programs.

We give your programs the profile they deserve by building your team with you in mind.